The Netherlands | Borstkankervereniging Nederland

Breast Cancer Society Netherlands is the patient association for everyone who suffers from breast cancer in the Netherlands, themselves or as a loved one. We are also the representatives for people with hereditary/familial predisposition to breast cancer.

Together, for each other!

The moment you are diagnosed with breast cancer, you need to find out what is really important for you. That's hard, like making decisions about your treatment. Taking time while feeling like you're drowning; telling others how you feel, while not getting a word over your lips; discussing things you've never discussed before... We know what you're dealing with. Breast cancer changes your life, your body, your feelings. Everything's suddenly different. You will face difficult choices that can affect you forever. You have all kinds of questions, but who can answer them? Breast Cancer Society Netherlands is standing next to you, behind you or right in front of you. Whatever you need. We are here, for you. 

Patient voice since 1980 

Breast cancer association The Netherlands has been founded more than forty years for people with breast cancer, hereditary/familial predisposition and their loved ones. We provide information, ensure peer contact and stand up for people who are dealing with breast cancer. We are committed to ensuring that everyone receives the treatment, care and support that is tailored to them and suits them. 

Projects Breast Cancer Society Netherlands 

We contribute to a better quality of care and life 

Quality of care focuses on diagnosis, treatment and aftercare. Quality of life is about the physical, psychological and social functioning of our supporters and their loved ones. 

Every patient needs good information, which is reliable and according to the latest developments. This allows patients to make informed choices (shared decision-making) about their treatment and how they want to deal with their illness or predisposition. In order to improve the quality of care and life, we address issues at hospitals, researchers, health insurers and other important parties. In addition, we respond to current developments and decisions of government and health insurers.

These are 3 of our projects we want to highlight: 

Platform breast cancer information

Which hospital provides what care for breast cancer, and what are the results? Which hospitals specialize in the treatment of specific types of breast cancer or metastatic breast cancer or hereditary predisposition? In the Netherlands, this is not all equally transparent. We are committed to ensuring that it becomes transparent for every patient. Through our website https://monitorborstkankerzorg.nl/ we offer insight into some available data. This allows anyone who wants, to gain insight into which hospital fits best. We want to expand the platform with the experiences of patients themselves with the care provided. We also want to provide more insight into expert care, such as metastatic breast cancer. 

Digital peer contact - “talking buddy “

"With each other, for each other" is our motto! We are there, both digitally and individually. Anyone looking for support can come to us, both in groups, digitally and one-on-one. We have a lot of volunteers (230) who provide their time and support. People can call us, email us and since mid-April, we have our online 'B-café' in which (former) breast cancer patients can exchange experiences in a completely safe digital environment. Every year we reach more than 5,000 people with our peer contact. 

Information in hospitals and general practitioners

So many questions, so many uncertainties, the diagnosis of breast cancer causes it all. And we are here to help. Because of all the stories we have learned over the 40 years from breast cancer patients, we know exactly what people are going through. We help by listening to them, advising them and thinking along. 

But to keep up our work, new patients and their loved ones need to know us and know what we can do.  So we cycle, walk, drive and walk past all the hospitals (about 80 facilities) to tell who we are and what we do.  Throughout the country, our volunteers are present and hand out information leaflets to guide people in their difficult journey. 

General Practitioners don't know us very well (yet). That's a missed opportunity because, with their help and network, we can assist more breast cancer patients. It takes time, energy and money to get them to know us.  And therefore we need your help and funding.