Portugal - Rosa Vida | Rosa Vida

ROSA VIDA is a non-profit association, whose primary mission is to improve the quality of life of breast cancer patients, their families and friends. Its two main objectives are:

1 - to disclose what is new on breast cancer recovery field, particularly at the postoperative level, that helps women to have a quick and functional return to their daily personal, family and professional life.

2 – to organise fundraising events, in which 100% of the amounts raised revert to support the oncological patients without financial resources that need treatments and post-operative services.

Starting from the existing network of Rosa Vida partners, the association created the G.A.O. (Office of Cancer Support). The aim of GAO is to assist everyone confronted with the diagnosis of cancer disease, as well as to help the whole family structure to deal with this new reality and to prepare it for the next phase: the fight against disease. Subsequently, and with the increasingly encouraging news of survival to this disease, it is necessary to help the former patient to a quick and functional return to their daily personal, family and professional life.

Through a team, which includes psychologists, physiotherapists, exercise technicians and nutritionists, GAO intervenes not only at the level of the patient diagnosed with cancer, but also in their family structure and their informal caregivers.

In the cases indicated as economic need, GAO has the support of the Rosa Vida Association to partially or totally share the services that the patient and / or their family and caregivers need.

GAO currently operates at Nortemed's premises, and counts as the main partners the Gym Tonic Wellness Center, MIM – Clínica do Desenvolvimento, o Postiço, Farmácia Cristal and SABSEG.

At the moment, in conjunction with the Hospital de Braga, GAO offers cancer patients a special program to recover functionality by promoting a faster return to active life: the Quality Onco Life Program.

The motto of the Association is "Life is not always a Rose, but the Rose means Life".

These are 3 signature projects for Rosa Vida:

Quality Onco Life Program

Based on a doctoral thesis, the Quality Onco Life Program (QOLP) is a physical exercise (PE) program that is properly adapted to the condition of women undergoing breast cancer (BC) treatment. These exercise programs, developed by PE professionals with a specific qualification, provide the decreasing of the side effects of chemotherapy, such as muscle mass reducing, loss of mobility and functionality of the affected limb or zone.

QOLP aims to create a certifiable model for PE applying during and after treatments and thus improving the quality of life of cancer patients. Therefore, minimum requirements must be defined such as gym and wellness centre minimum physical conditions, PE professionals specific training (see attach) and PE guidelines.

Pink Bees

Parents with cancer (PWC- Program): a pilot program to improve supportive relationships at school

A parent with cancer is a stressful event for children, who might experience greater emotional distress as a consequence of family and parental disruption (Faccio, Ferrari & Pravettoni, 2018). However, we also know that supportive relationships might be protective of the negative effect of parents’ cancer on psychological difficulties (Fasciano et al., 2007). Specifically, school is a significant context for children, and it is recognized as an important source of support. However, the evidence suggests that teachers need additional skills to address the children’s needs, as they are more focused on parents and to provide general information about cancer (Huizinga, Visser, Zelders-Steyn, Teule, Reijneveld & Roodbol, 2011). 

As such, this project aims to develop, implement and evaluate a pilot program focused on training teachers’ skills to deal with the impact of parents’ cancer in terms of children’s psychological well-being. This project will allow the implementation and dissemination of this program, nationally and internationally, in school contexts. 

Oncology Support Office

Starting from the existing network of partners, the Rosa Vida Association created the G.A.O. (Oncology Support Office).

The aim of the Office is to assist everyone faced with the diagnosis of oncological disease, as well as to help the entire family structure to deal with this new reality and prepare it for the next phase: the fight against the disease. Subsequently, and with the increasingly encouraging news about the survival of cancer, it is necessary to help the user to return quickly and functionally to his daily personal, family and professional life.

The Office, through a team, which includes psychologists, physiotherapists, exercise technicians and nutritionists, intervenes not only at the level of the patient diagnosed with cancer but also in his family structure and his informal caregivers.

In cases marked as economic need, the Office counts on the support of the Rosa Vida Association to partially or totally reimburse the services that the user and/or his family and caregivers need.